Suswati Basu

53 Flips | 2 Magazines | 8 Likes | 10 Following | 3 Followers | @suswatibasu | Keep up with Suswati Basu on Flipboard, a place to see the stories, photos, and updates that matter to you. Flipboard creates a personalized magazine full of everything, from world news to life’s great moments. Download Flipboard for free and search for “Suswati Basu”

Love and dating in the time of HNPP

Having HNPP thankfully isn’t the end of the world, but it does make things rather difficult when it comes to relationships. This may not apply to you …

The effects of HNPP during pregnancy

There can be a lot of worry and anxiety that arises during pregnancy, one of which includes what to expect, especially with HNPP. Many can have a …

Are facial issues associated with HNPP?

When your face unexpectedly becomes numb, or begins to spasm, many HNPP sufferers do wonder what godforsaken cause could be behind it. Yet, it isn’t …

The difference between HNPP, CMT and CIDP

One of the first responses that seems to appear on search engines about Hereditary Neuropathy with Liability to Pressure Palsies is its relation to …

How the internet can help HNPP sufferers

There are days where you don’t have the time, energy, let alone the funds to help yourself. And as a result reaching out can be a lot of effort. So …

Feeling hot and cold with HNPP

Four weeks of having hot flushes made me wonder if I was getting my menopause 20 years too early. Or whether it could be related to medications. An …

Washing and showering with HNPP

Not everyone faces this problem thankfully, but for those who do, showering and generally washing can be an absolute pain with HNPP. The energy …

HNPP and the guilt of depending on someone

<i>Dedicated to all the wonderful friends and family in the world helping those with HNPP.</i><p>Last week was particularly frustrating. After two weeks of …

HNPP and digestion issues

It’s considered one of the more taboo subjects given the ’embarrassing’ nature of the topic, but a large amount of HNPP sufferers appear to …

Can hearing be affected by HNPP?

A discussion about the effect of HNPP on hearing arose in a group forum, and the possibility of damage to the auditory nerve. Some members have said …

Do HNPP sufferers get brain fog?

You walk into a room, knowing you’re there for a reason, but within moments you’ve forgotten why you’re there. Some sufferers of HNPP claim to suffer …

How to travel with HNPP

<b>Ensure that any chronic illnesses are well controlled –</b> it may be useful to see your health care provider to ensure that the management of your …

When HNPP ’causes breathing problems’

If you didn’t think it was possible, but some individuals with HNPP claim they suffer from breathing problems due to anomalies with certain nerves. …

Neuropathy

HNPP and chronic pain flare-ups

<b>Snacks –</b> from cereal bars and rice cakes to assorted nuts (obviously not if you’re allergic), having a stash of snacks can help get you through …

Gadgets to help cope with HNPP

With its muscle aches and chronic fatigue, HNPP can make the simplest activities painful and difficult. At its worst, it can make chores you once …

Slow Cookers

HNPP, belief and the impact of misdiagnosis

The cause of HNPP remains unknown. Only the fact that it is an inherited condition is recognised. According to many websites, it’s considered …

Mental Health

Can HNPP lead to bone-related issues?

There appears to be a common trend of patients with HNPP having joint-related issues, which seems to go hand-in-hand with the fact that …

Pain

What to avoid with HNPP

An interesting discussion emerged on one of the HNPP groups about how certain products can actually have a reverse effect on the nerves. While there …

Medicine

Coping with multiple conditions including HNPP

Many people living with HNPP have the arduous task of coping with more than one condition on top of the neuropathic symptoms. From dystonia and …

Mental Health

Profile: Jessica Kellgren-Fozard on living with an ‘invisible disability’

“I received a lot of online hate based on how I am not visibly disabled,” says TV presenter Jessica Kellgren-Fozard. Jessica, 28, from Brighton, UK, …

Disability

Is walking good for those with HNPP?

From walking 15km a day to walking 15 minutes a day, my walking journey has been chaotic to say the least. But it was another essential question I …

Physiotherapy

When small tasks become daunting with HNPP

It’s taken me a week to prepare myself to wash my extremely long hair. The task seemed almost impossible after feeling fatigued the past several …

You can’t see it

You know I am in a lot of pain right now and no one would know it. It is from a lot of types of pain. A raging migraine. Intense allodynia on my back …

Why do some HNPP results appear negative?

Genetic testing for HNPP can be daunting, mostly because it can be a confirmation of all your worst fears. At the same time, it can come as a relief …

Genetics

Why do HNPP sufferers say ‘I’m fine’?

It seems to be a common occurrence with those with chronic illnesses to never admit to feeling less than fine. When someone asks, “How are you?” the …

Mental Health

Can diets help with HNPP symptoms?

Having a neuromuscular condition like HNPP can pose some unique challenges to weight loss, especially when designing an exercise and diet routine. If …

Is surgery worth it with HNPP?

Carpal tunnel syndrome seems to be a common occurrence with many HNPP sufferers, and the symptoms sometimes overlap when it comes to nerve damage …

Dealing with genetic testing with HNPP

Getting genetically tested can be traumatic depending on the outcome, but for many it is a necessity. The uncertainty of not knowing for either …

Molecular Biology

Can new technology help HNPP sufferers?

A discussion about how technology needs to advance to fulfil the needs of HNPP sufferers led to me searching about smart new neurotechnology devices …

Pain

Side effects of medication for HNPP

After discovering that suffering from a fever and chronic fatigue for the past two weeks was down to my medication left me feeling alarmed. So is it …