Health Privacy and Disclosure

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Grief on social media and reaching closure through disclosure

March 19, 2017 5:00 AM<br>A former schoolmate lost her father late last year. His struggle was swift and brutal; just two months and his heart failed him.

Social Media

Anonymity Versus Privacy: Selective Information Sharing in Online Cancer Communities

Cancer rates are increasing across the developed world. In America, the lifetime risk of developing cancer is now 1 in 2 for men and 1 in 3 for women …

Privacy

What does it mean to own your health data?

In Topol and Kish's formulation, individual health data will feed into big data breakthroughs.<p>"Give me my damn data" has been a refrain among …

mHealth

Why your doctor won't 'friend' you on Facebook

Doctors' practices are increasingly trying to reach their patients online. But don't expect your doctor to "friend" you on Facebook -- at least, not just yet.<p>Physicians generally draw a line: Public professional pages -- focused on medicine, similar to those other businesses offer -- are catching …

Health Care

Glyn Elwyn et al: Crowdsourcing health care—hope or hype?

<b>The Dartmouth Center for Health Care Delivery Science</b><p>How does the increasing interest in the use of crowdsourcing platforms, as a way to help …

Medical Technology

3 Health Stories You Must Know...Plus 1 Un-Story

Photo Credit: Marina Tsaplina<p><i>“</i><i>Has anyone ever told you to be positive when you feel ill? Often in my life this has happened.”</i><p>These were the words …

Storytelling

When parents overshare their children's disability

Last week I took part in a fantastic Twitter chat around the power of disability stories. The chat was a part of the National Museum of American …

Parenting

Before that genomics revolution, we need interoperability, patient engagement and privacy

The White House’s Precision Medicine Initiative is widely viewed a harbinger of a genomics revolution – one that comes with massive potential, but …

Medical Technology

What is depression? You asked Google – here's the answer

Every day, millions of internet users ask Google life’s most difficult questions, big and small. Our writers answer some of the commonest queries<p>To illustrate how horrible it was, being in jail in a wheelchair with four broken limbs after the car accident that prompted me to get sober ... was much, …

Symplur Signals for the Patient Community – Starting a New Conversation

I first approached Tom and Audun about working together with the hopes of highlighting various patient communities, validating efforts of patient …

Collaboration

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10:05 - 10:50 amSaturday, September 26<p>Plenary Hall<p>Privacy: Preventing harm or innovation?<p>Plenary Hall<p>Privacy: Preventing harm or innovation?<p>Privacy …

Stanford University

When the Patient Is a Googler

We had never met, but as we talked on the phone I knew she was Googling me. The way she drew out her conjunctions, just a little, that was the tip …

Health

The Impact of Creating Emotion in Healthcare Design

<b>Editor’s Note:</b> <i>Stuart Karten is the principal of Karten Design, a product innovation consultancy creating positive experiences between people and</i> …

Digital Health

Live Video Apps Like Periscope Make Life Even Less Private

Cameras are ubiquitous — from the ones in our cellphones to the security cams in parking lots and shops. And just when you thought it couldn't get harder to hide, live-streaming video is raising new questions about privacy.<p>Streaming video cameras aren't new, but new apps have made it super easy to …

Social Media

Main menu

What if Andy Warhol had it wrong, and instead of being famous for 15 minutes, we’re only anonymous for that long? In this short talk, Juan Enriquez …

Art

10 Privacy Principles for Student Data

Student data should be used to further and support student learning and success.<p>Student data are most powerful when used for continuous improvement …

Privacy

How to balance data privacy and healthcare improvements

The glut of healthcare information that is being generated through electronic medical records, wearable devices and centralized databases offers …

Big Data

Instagram Deletes Profile Accounting Journey Of Cancer-Stricken Toddler

<b>LOS ANGELES (CBSLA.com) —</b> The mother of a young child who battled a rare cancer for over a year is fighting Instagram after the social media service …

Instagram

Reddit enacts anti-harassment policy after user complaints

NEW YORK — Reddit, the online discussion forum known for its free-wheeling ethos, is enacting an anti-harassment policy while still trying to keep …

San Francisco, California

Patients press the ‘record’ button, making doctors squirm

My dad had a health scare recently, and at a doctor’s appointment to receive some important test results, my mom wanted to record audio of the visit on her smartphone. “If he had gotten some terrible diagnosis, I wanted to be able to share that discussion with you and your sister,” Mom told me …

Health Care

Is Privacy Becoming a Luxury Good? Julia Angwin - Strata + Hadoop 2014

Big Data

Digital health records are not safe, report on breaches shows

Electronic health records were supposed to make life better for patients and doctors -- getting rid of bulky and messy paper files, streamlining delivery of care and organizing medical information so that scientists can use it to make discoveries.<p>But those benefits could be for naught if digital …

FDA assoc director of digital health: We are taking almost hands-off approach

For all the interesting technological developments coming out of the convergence of medical devices and digital health, it’s also creating a growing …

Medical Technology

Americans Believe Personal Medical Data Should Be Openly Shared with Their Health Care Providers

NEWBURYPORT, Mass., March 19, 2015 /PRNewswire/ -- Nearly 75 percent of American adults surveyed believe it is very important that their critical …

Will the rise of ‘over-sharenting’ mean the end of privacy for our children?

Your toddler vomited in the car on your way to the dentist. Frazzled, you post a status on Facebook about the terrible, horrible, no-good, very bad day.<p>Your newborn has decided that sleep is for the birds and you seek late-night company among the other moms. Oh, and doesn’t she just look like an</i> …

Parenting

Looking Up Symptoms Online? These Companies Are Tracking You

The vast majority of the internet's health sites are sending troves of data about your medical searches to corporations.<p>It's 2015—when we feel sick, fear disease, or have questions about our health, we turn first to the internet. According to the Pew Internet Project, 72 percent of US internet …

Privacy