MyHealthShare Chronicle

By MyHealthShare | Daily Disability, Medical and Health News Updates

Art exhibition displays how adults with disabilities gain opportunities on busy livestock farm

AN EXHIBITION of artwork is on display of a charity which gives adults with learning disabilities work and social opportunities on a farmyard.<p>For …

Livestock

Ride-sharing services leave people with disabilities behind

During a recent browse of my Twitter feed, a quotation from Mayor Bill Peduto jumped out at me. At the National Summit on Design and Urban Mobility, …

Pittsburgh

Prepare for Success When Traveling with a Child with Special Needs

Whether you’re driving or flying, traveling has a unique way of causing exorbitant amounts of stress. You worry if you’ve packed all the essentials …

Special Education

2017 RARE Champion of Hope Awards

<b>Nominations are open April 1-May 31, 2017.</b><p>Annually, the Rare Disease Community comes together to look amongst themselves to identify and nominate …

Medicine

MS vs. ALS: Differences, causes, and treatment

Multiple sclerosis and amyotrophic lateral sclerosis are both progressive diseases that affect the central nervous system.<p>Though the diseases are …

Medicine

India ranks 154 in global healthcare rankings for 2015, Switzerland tops list

India ranked a lowly 154th on Healthcare Access and Quality Index, making it among the biggest underachievers in Asia, in a list that was topped by …

Health Care

Ironman dad races for daughter diagnosed with rare genetic disorder

On Sunday, athletes will swim, bike and run across Chattanooga.<p>The half Ironman Chattanooga kicks off on Friday with the opening of Ironman …

Autism

Scientists to develop life-transforming drugs for Huntington’s disease sufferers

Scientists at the University of Sussex have started work on a multi-million pound project to develop drugs to treat the debilitating loss of …

Dementia

Rice plant engineered with a ‘tunable’ immune system could fight multiple diseases at once

Study is another step toward pesticide-free but high-yield agriculture

Biology

China's Rare Disease Policy (or Lack Thereof)

China is about to publish its first list of national rare diseases. <br>Given the population of China and the fact that 8-10% of people globally have a …

China

India among Asia's biggest underachievers in healthcare access

New Delhi: India has a lot of catching up to do with its neighbors, including China, Bangladesh, Bhutan and Sri Lanka in terms of health …

Pandemic alert: How lessons from China can help us rethink health threats

In China, change occurred with the introduction of maps by Western missionaries in the 16th century

Disability and Hermeneutical Injustice

Friday, May 19, 2017<p>Disability and Hermeneutical Injustice<p>Ashish George in <i>Liberal Currents</i>:<p><i>The Minority Body: A Theory of Disability</i> is Barnes’s …

Cartoon in the works featuring heroes with disabilities

<b>BUFFALO, N.Y. (WIVB) —</b> There is a new cartoon in the works for kids with disabilities.<p>It’s called “Team Supreme.” Each member has an individual …

Buffalo

Resilience study examines how people with disabilities live successfully in rural areas

Living in a small town can be challenging for anyone. For people with disabilities, rural areas can create even more serious barriers to …

Goodwill holds Rocky Mount prom for those with disabilities

<b>ROCKY MOUNT, Va.</b> - It was a special day for those with disabilities who participate in Goodwill programs as they had the chance to attend prom.<p>From …

Colorado

Govt, British University to Partner On Health Package for Elderly

[Premium Times] The Nigerian government has accepted a proposal by Birmingham City University, United Kingdom for partnership on a healthcare package …

Africa

Global Genes® to Convene RARE Partnering and Investor Forum to Accelerate Drug Development for Rare Diseases

ALISO VIEJO, Calif., May 19, 2017 /PRNewswire-USNewswire/ -- Global Genes®, a leading rare disease patient advocacy organization, will host the …

Living with rare disease

Parents of Children With Rare Disease Move Researchers to Connecticut

Gayle Temkin spends her days at Solomon Schechter Day School, where she occupies a small, windowless room to be near her daughter Alyssa, ready to …

Medicine

For millions of Chinese with rare diseases, some relief in sight

NANJING, China: China is set to publish its first national list of rare diseases, to guide policymakers as part of a broader overhaul to improve …

Pharma

Girl with rare disease singing in viral video meets Grammy winner behind song

Earlier this year, 4-year-old Leah Carroll, a California child who has a rare blood disease, lifted spirits worldwide when her rendition of the song …

Viral Videos

As Her Boys Battle Rare Disease, Mom Drives for a Cure

There are five people in the United States that live with Jansen’s Metaphyseal Chondrodysplasia. Neena Nizar and her two sons, Arshaan and Jahan, …

Public Health

For millions of Chinese with rare diseases, some relief in sight

NANJING, China (Reuters) — China is set to publish its first national list of rare diseases, to guide policymakers as part of a broader overhaul to …

For the First Time Ever, Researchers Produced Lab-Grown Blood Stem Cells

Stem Cells to Bone Marrow<p>In two separate studies, researchers have successfully created blood stem cells in a laboratory setting for the first time. …

Never give up! This 28-year-old man who is not functional from waist down becomes gold medalist (photos)

<b>- An Indian disabled man proves disability is not inability</b><p><b>- He is a champion swimmer who has won several medals</b><p><b>- He is paralyzed from the waist …

Olympics

Sickle Cell Drug Candidate Granted FDA Rare Pediatric Disease Designation

The U.S. Food and Drug Administration (FDA) granted rare pediatric disease designation to IMR-687, Imara’s drug candidate for the treatment of sickle …

Medicine

Parents of Kids With Special Health Needs Are Making a Huge, Secret Social Contribution

Susan Campbell and her son, Jack Campbell.Photo illustration by Lisa Larson-Walker. Photo courtesy Susan Campbell. Every morning, for most of his 19 …

Health Care

The Importance of Patient Engagement in Orphan Drug Development

Orphan Drugs and Rare Diseases UK 2017 will be returning to London this Autumn following it's previous success in Europe. LONDON, UNITED KINGDOM, May …

Pharma