MyHealthShare Chronicle

By MyHealthShare | Daily Disability, Medical and Health News Updates

IU-led team maps Zika virus protein to speed search for cure

"We need to do everything we can to find effective drugs against the Zika virus, as changes in travel and climate have caused more tropical diseases …

Viruses

Doing it for Mags

Mags is hoping treatment in the US can get her life back on track before there’s permanent damage.<p>Mags is hoping treatment in the US can get her life …

Day of the Dead

Teacher’s Epic ride realised

“Currently, I’m on enzyme replacement therapy treatment. Every two weeks I get infusions<p>“They are trying to put the enzyme that I’m missing in my …

News (South Africa)

Patients call for halt to NICE changes

A coalition of almost 200 patient groups representing families affected by rare and genetic conditions have called for a halt to planned changes in …

Pharma

Few set up trust fund to care for kin with disabilities

March 29, 2017 5:00 AM<br>Although many parents of those with disabilities worry about what will happen to their children after they die, few have taken …

Estate Planning

Invisible disabilities still hurt

Tuesday, March 28th, 2017<p>By Sydney Albert<p>Invisible disabilities still hurt<p>Lake Campus program seeks to improve awareness<p>CELINA - Students and faculty …

Disability

Columbus couple with developmental disabilities all set for their first prom

When David Paige attended Columbus High School back in the 1970s, he dreamed of going to the prom like all the other teenagers.<p>No one invited him, he …

Autism

Proposed registry would protect Ohioans with autism and other disabilities, lawmaker says

COLUMBUS, Ohio -- A pair of Ohio lawmakers are proposing a voluntary registry for individuals with autism, speech impairments or other disabilities …

Autism

Japanese man is first to receive 'reprogrammed' stem cells from another person

World-first transplant, used to treat macular degeneration, represents a major step forward in movement to create banks of ready-made stem cells.<p>On …

Genetics

There Are at Least 79 Obesity 'Syndromes'

When it comes to obesity, there's more than meets the eye: A new review of studies from Canada suggests that obesity comes in at least 79 different …

Genetics

Forensics: Germany considers wider use of DNA evidence in criminal cases

The country may lift its ban on the analysis of gene-coding regions in DNA samples.<p>Behind closed doors this week, the German federal justice ministry …

Genetics

Surgery may damage mental ability by cutting off oxygen, Everest study shows

Surgical operations involving anaesthetic may damage mental ability by starving the brain of oxygen, researchers fear, after conducting tests on climbers as they scaled Mount Everest.<p>Up to one fifth of people develop hypoxia, or oxygen deficiency, after surgery which can lead to symptoms including …

The Brain

This Tiny Device Is a ‘Game Changer’ for People Facing Blindness

An estimated 170 million people worldwide suffer from age-related macular degeneration (AMD), a serious eye condition marked by the death of light-sensitive cells in the retina. Doctors can slow macular degeneration with vitamins, laser surgery, stem cell treatments, and even implantable miniature …

Medical Technology

20 Interesting Things About Famous Conjoined Twins Abby And Brittany Hensel

I love a lot of things in life. But nothing quite as much as sitting down on the couch and watching TLC reality TV shows. I've seen them all! <i>My</i> …

Tulane Home

The two daughters of Tulane alumnus Chris Andrews, left, and his wife, Pam, second from right, were diagnosed with a rare, life-threatening illness …

Medicine

'We cannot let our guard down': Why TB is still a threat in Canada

Tuberculosis, once known as 'consumption,' killed 1.8 million people around the world last year, and while it is much less common in Canada than …

Public Health

Rare, debilitating disease strikes two toddlers, but a dream of mobility is coming true

WEST RICHLAND, Wash. – There's almost no greater tragedy than losing a child. Knowing a child has a disease with no cure or treatment is a diagnosis …

Parenting

Family asks for help to find treatment for daughter's rare genetic disorder

<b>NEGAUNEE, Mich. (WLUC) -</b> An 18-month-old Negaunee girl was recently diagnosed with a rare genetic disorder and her family is asking for help.<p>"Sadie …

Genetics

Mother fights in honor of son

Kris Klenke and her daughter Chelsey recently traveled to Washington, D.C., to meet with legislators during rare disease week. They met with …

2-year-old with rare genetic disorder sworn in as New Jersey's youngest police officer

Trent Powers battles Duchenne muscular dystrophy which is very rare and can be deadly.

Policing

Motor neurone disease and schizophrenia are linked - study

Irish-based researchers have shown for the first time that motor neurone disease and schizophrenia are genetically and biologically linked.The …

Psychiatry

Jennifer O’Connell: Loving someone with Alzheimer’s is a silent grief

Yet amid the slow loss, there are moments when glimmers of the person emerge from the shrouds of the disease

News (Ireland)

Confronting society’s conceptions of disabilities in the arts and media

For Students With Disabilities, Supreme Court’s Decision Means We Can No Longer Be Ignored

Too often, kids with disabilities are left behind.<p>As a legally blind student, the first day of school holds special meaning for me. Along with excitement and nerves over new teachers and new classes, that day each August also affirms my sense of belonging—a sense that I am claiming a right just as …

Education

Oakland-Craig students with disabilities use new sensory room

MENU<p>Week twelve of the first biennium of the 105th Legislature consisted of days 50 through 53 of the 90-day session. Last week was National …

Women's Basketball

Office of Rare Diseases Research (ORDR)

To honor Multiple System Atrophy Awareness Month please watch and share this video. Thirteen thousand Americans and thousands more around the world …

Why we have to create more disabled characters in children's fiction

Author Susie Day grew up in 1980s when her personal experience of people with disabilities was Joey Deacon on Blue Peter. Disability in books was a cautionary tale where you’d usually ‘recover’ if you were nice enough. Times have changed and children’s lit needs to catch up faster<p>Picture if you …

Autism

Virginia’s appalling prosecution of disabled children

In the March 8 Metro article “Bill would shield young special-needs defendants,” Lori Digiosia claimed that prosecutors do not want to prosecute juveniles for misdemeanors when their “disability is the root cause of that criminal behavior.”<p>Is she kidding? Not only do Virginia prosecutors bring …

Autism